Sunday, June 29, 2008
Sunday, June 15, 2008
Does he look like he had surgery 5 days ago? We pulled up in the driveway and his Uncle Brad (sorry aunt lisa, brad was here so i guess he gets the credit) bought him a F-150 battery powered truck. He went right from the Denali to the truck. He didn't even go in the house. He spent 30 minutes driving that thing then we made him come in. How spoiled is that!! The hard part has been trying to keep him down which I have come to the conclusion is not happening. Everyone keep your fingers crossed we don't end up in the ER because he injured something.BOYS !!!!AWE!!!!
Jaces day nurse Lisa. She was so awesome. Jace hated when they had to take the tape off and so Lisa gave him a tub of water to soak his arm in so it wouldn't hurt when it was taken off.She also put the medicine in his IV just right so it wouldn't hurt. Jace also learned to unhook himself from the machine so he could go walking when he wanted. Thats when Lisa said he had stayed to long and it was time to go home. Once you learn to disconnect and reconnect yourself from the machines you need to go.(He was so proud of himself for figuring that out). He also took his own IV out and insisted on keeping what was attached to his arm for his scrapbook. Maybe he will be the doctor in the family. We love you Nurse Lisa! Thanks for making our hospital experience a good one. Jace also had another favorite nurse Brigette that was on the night shift but she escaped without a picture. These nurses at Sunrise hospital will always hold a special place in our hearts.
I would just like to share a very touching experience that both Gino and I had while in the hospital with Jace. While we were in the waiting room waiting to see Jace a very sweet gal named Rachel came and introduced herself. I think we were both looking alittle distraut. They told us we would be seeing Jace in 15 minutes and it had be 1 1/2 hours. She said she was in the room next door and why don't we come meet her daughter Olivia. We would be able to see Jace through the window in Olivias room. The minute I laid eyes on Olivia I fell in LOVE. Rachel told us that she had Leukimia but it had gone into remision. Because of part of the chemo she had developed pancreatitis and her kidneys and I believe part of her liver were failing. I was in awe. Here is the mother with a very sick child befriending Gino and I and helping us in every way possible. Since our rooms were next to each other we became good friends over the 5 days we were there. Gino and I were just as concerned for Olivia as her own parents. Later Gino found out that the left over sandwiches that the Ronald Mcdonald house would send in Rachel would gather up and take to the homeless. What a great selfless act. She could have spent that extra 1/2 hour or so that it took her to drop the sandwiches off to be with her 2 year old son. Instead she chose to do and act of service. What a great lesson this has taught me about service and pitying ones self. She nor her husband Bill did any of that. Once Jace started walking he liked to step in and say Hi to Olivia. Sometimes in the middle of the night if he heard a noise he would ask me to get up and check to make sure Olivia was o.k. They may have done surgery on his to big heart but it didn't change the big heart he has. I was so greatfull when Rachel came to our room and asked us to join them in a fast for Olivia. Gino, Ty and I were able to fast on Saturday and I am so gratefull for the opportunity. Please keep sweet Livi in your prayers. Things are looking up for here but she is still not out of the woods. When we left she was awake and Jace was able to say goodbye to her. She waved and said goodbye back. When we went in she wasn't even able to move she was sudated and hooked to to many machine. Please take a minute to say a prayer for our precious friend Livi.
Jace up and walking around. Once he started we couldn't stop him. He still cruised even with his leash ( Chest tube Ginos holding) we had a hard time keeping up with him. You go buddy I am so proud of you. Mind you up to this point he had not complained once other than when they took him off the ventilator machine and the respitory therapist told him he needed to start talking the first words he said was "I want to drive the Hummer again". Daddy told him if he would work on breathing properly and keep doing what he was told we would get him one.
My sweet boy all hooked up to machines. I was so glad to see him. I had seen dad in the state when he had his surgery and thought I could handle it. Its alittle different when its your baby. Dr. Ciccolo said he did awesome. He got out of the Hummer which he parked right beside the bed. Climbed into bed and asked for his watermelon breathing mask. They told us it would take 1 hour to sudate him and another 2 for the surgery. 45 minutes later the nurse came and told us Jace was out and the insision had been made. 1 1/2 hours later Dr. Ciccolo was explaining that everything went wondefully. The hole was fixed and the arteries that were to high on the venicava had be successfully moved. He said that as soon as they were done his heart instantly went small.(like it was suppose to be) I always knew my little boy had a big heart.
This is were they told Gino and I we couldn't go any farther. Jace was so excited to drive the Hummer that he would even stop and wave. Gino and I ran down the hallway against nurses wishes to give him a hug and kiss. What an awesome boy. No tears no nothing. We explained what was going to happen and he was ready. See you in 3 hours!!
Wednesday, June 4, 2008
Monday, June 2, 2008
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